tag:blogger.com,1999:blog-2328864115032220557.post7168360287977968639..comments2022-03-27T01:33:01.103-07:00Comments on Lily Bean's Infantile Spasms Journey: Still not much to report!Katiehttp://www.blogger.com/profile/07032813023109980348noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-2328864115032220557.post-25044906376667159362008-04-07T13:07:00.000-07:002008-04-07T13:07:00.000-07:00Hope the MRI went well. The diet takes a while to ...Hope the MRI went well. The diet takes a while to kick in sometimes. It's all of then fine tuning. I'm excited to hear that Lily's more alert and responsive! We experienced the same thing.<BR/><BR/>Noah's first IEP for Kindergarten is in May. I'm looking forward to hearing about Lily's IEP. Hope it all goes well!<BR/><BR/>Cathy<BR/>Noah's Mom (5 yr. old w/GEFS+)<BR/>www.ketokid.blogspot.comCathyhttps://www.blogger.com/profile/05970756124476899711noreply@blogger.comtag:blogger.com,1999:blog-2328864115032220557.post-79585124746245263752008-04-07T13:05:00.000-07:002008-04-07T13:05:00.000-07:00Having been through several MRIs myself, I can't e...Having been through several MRIs myself, I can't even begin to imagine how frightening and uncertain something like that must be for little Lily. Do they use the newer "open" MRI machines, or is it the claustrophobic tube with the loud "ba-dump ba dump ba-dump bwaaaaah!" ?<BR/><BR/>Hang in there Lily! (and parents!!!) Like I told you in email, I believe she can come through this.<BR/><BR/>Be well.<BR/>ChrisChris Vacanohttps://www.blogger.com/profile/16202847808736945092noreply@blogger.comtag:blogger.com,1999:blog-2328864115032220557.post-21281109092302841792008-04-02T21:34:00.000-07:002008-04-02T21:34:00.000-07:00I hope all went well with the MRI yesterday. I lo...I hope all went well with the MRI yesterday. I love how you say "just a routine MRI". Isn't it crazy how such nonroutine things for most people seem like such a routine thing for us?!? Congrats to Lily on her consistency on signing more and good luck with your IEP.Sophie's Story by Elainehttps://www.blogger.com/profile/00415731740298071423noreply@blogger.com