Sunday, January 21, 2007


Welcome to Lily's blog!! We are so blessed to have so many people interested in Lily's progress & development, and are grateful for your continued support.

After forwarding too many emails to too many people, I finally decided that Lily was popular enough, at 18 months old, to warrant her own blog. Such a cutting edge girl!

I will do my very best to update this blog at least once each week with what is going on in Lily-Land, and of course will update after any doctor appointment or major change.

Over the coming days, I will try & get some very helpful links about Infantile Spasms available to anyone who wishes to learn more.

If you are a parent of a child who was recently diagnosed with Infantile Spasms, know that you are not alone! IS is a terrifying disease, and the period following your child's diagnosis is a very, very difficult one. Please consider joining the Yahoo Group for Infantile Spasms. The group is an amazing wealth of information, support, and love. I would be walking a very different path were it not for the knowledge & support of the members.

Please feel free to forward this page on to anyone who may be interested in learning about Lily and her journey with Infantile Spasms & epilepsy.

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