Saturday, February 16, 2008

Keto Diet, Day 4

Today was a better day. We got Lily's labs turned around, and she had much better color and energy. She took most food today & kept it down. She still flat out refuses any liquids, but I think that might be partly due to being on IV fluids for 24+ hours, and the fact that her IV is in her right, dominant, hand so she can't grasp a cup.

We're HOPING they'll let us come home tomorrow. I think if her labs are stable, she's still taking food & liquid (we're forcing the liquid at this point), they'll let us come home. I also think being in her home setting where it's familiar, routine, and comfortable will help Lily.

My grandma has been diagnosed with Angioimmunoblastic T-Cell Lymphoma, a rare & very difficult to treat form of Lymphoma. If you can spare good thoughts, my family would appreciate it.


Lori said...

Hello- My 2 yr old daughter Nora has(had) IS and we never had to try the keto. ACTH worked for us. I am so sorry the keto is such a struggle for you all. I was reading older posts and saw that you live in Shoreline-is that WA? We live in Seattle, WA. It's so rare to find anyone living near us that has had the same experiences. I hope Lily is doing better and that you all get to go home soon. Lori

Lori said...

Also, if you want to read about Nora's IS journey go to

Good luck